Hey all -
Forgive the mass email. It’s really good news… breathe deep :)
Just wanted to give you all an update on me and what the Lord has done in the last 18 months. It’s a bit of a story, but the details will make the ending that much better :).
Eighteen months ago I started feeling really terrible. I was tired, like crushingly so, every day and could hardly complete a day without needing to sleep at some point. My body hurt, I couldn’t think straight and words would escape me all the time and speaking became downright embarrassing. I lost motor function in my legs with regularity and would stumble and fall nearly every day. I had all kinds of pins and needles stuff happening around the clock in my feet, hands and face. I was a hot mess.
For the first few months I ignored it and chalked it up to stress. After 6 months with no improvement, I started having tests with cardiologist, neurologist, general practitioners and physical therapist. The early diagnoses were terrifying: MS, stroke, blood diseases. Everyone was puzzled. However, every blood test, MRI, brain scan and test was coming back inconclusive. So, one year ago in mid-October, my sweet husband sent me to Hawaii for several weeks to breathe plumeria air and get well. (He’s a keeper.) While I was there, I got a call from my doctor saying I had Late Stage Lyme Disease and a strain of Epstein Barr. It had a name! I began immediate treatment on heavy doses of medications. Once home, I took the meds for four months that ironically made me feel worse than I did to start. Puzzled by that, in one of my follow up appointments with an infectious disease specialist I had been waiting months to see, he told me flat out that I did NOT have Lyme disease, but he wasn’t sure what I had. #BestDayEver :( Square one.
I broke up with all of my doctors and vowed to start all over to figure it all out. Instead, completely physically and emotionally exhausted, I did nothing. I was overwhelmed and my body was done. So - I did what any responsible adult would do: I cried, ate a ton of chocolate and pouted… for six months.
I was asked to speak at a women’s worship round table at Church of the Highlands the first week of October (one month ago). Two years ago, I would have been so ready that I wouldn’t have needed to rely on my notes much, but due to all of the aphasia where words just wouldn’t come, I was nearly having to read my message word for word. I told the gals gathered there that I wanted to be vulnerable with them and that I had been diagnosed with some kind of autoimmune thing and while it didn’t have a name, God was my healer and I needed to speak it out because somehow, it was going to be a part of my testimony. Just that simply. I then went on with the rest of the message.
Two days later, Leigh, my friend from Church of the Highlands called. She had been tracking along with me in the last year and knew that the event would have physically wiped me out. She called to see how I was feeling. I hadn’t taken time to take an assessment but when she asked I thought carefully and slowly said, “Leigh - I think I’m feeling better!”. She said quickly, “It’s because you spoke it out!”.
Sure enough - I’m here to say. I’m healed.
Here, nearly a month an a half later, I have no residual effects whatsoever. I just came off three major conferences that should have completely wiped me out. Instead, I’m just normal tired :) My body feels strong and I feel like I’m getting my brain back (no jokes - thank you) :)
So - while it’s been a bit of a story - it’s a good one. God is faithful. He’s my healer. The End.
Thank you for each of you that have asked and prayed, walked the road with me, helped me finish sentences and literally held me up. You are amazing.